Tag: trial enrollment barriers

Targeting Undiagnosed Populations for Rare Disease Studies

August 9, 2025

Targeting Undiagnosed Populations for Rare Disease Studies Innovative Strategies to Identify Undiagnosed Patients for Rare Disease Trials The Hidden Population: Why Undiagnosed Patients Matter One of the most significant barriers in rare disease clinical research is the “diagnostic odyssey” — the long, uncertain journey many patients endure before receiving a diagnosis. For some, this process…

Patient Recruitment Challenges, Rare and Orphan Disease Trials

Telemedicine for Rare Disease Trial Participation: Best Practices

August 3, 2025

digi

Telemedicine for Rare Disease Trial Participation: Best Practices Best Practices for Using Telemedicine in Rare Disease Clinical Trials The Role of Telemedicine in Rare Disease Research Telemedicine has become a pivotal tool in expanding access to clinical trials—particularly for patients with rare diseases who often reside far from major research centers. These patients face unique…

Patient Recruitment Challenges, Rare and Orphan Disease Trials